Showing posts with label Children with Starving Brains. Show all posts
Showing posts with label Children with Starving Brains. Show all posts

Sunday, November 29, 2009

Wednesday, November 25, 2009

Post tramatic trip disorder

We got back into Dallas last night at 1 a.m. The two hour time difference was hard to work around for all of us while we were in California for the Amen Clinic appointment that we had. Ian stopped all his meds on 11/19/2009 for the brain scan. His first three days off were great. Higher vocabulary and a decent temprament. He was well enought for us to actually enjoy a FULL day of Disney on Sunday 11/22/2009. Now, the meds were starting to wear off and on Monday he had his brain scan.

That scan was read with Mom on Tuesday and she videoed it since Ian was not in a mood to sit still and visit with the doctor. The video will be posted. The return home was the most challenging of the trip. Even though we knocked him out, his excema (sp?) was so bad it was waking him up and he was waking up the whole plain. We had a very nice trip but are all very tired. I will work on posting video later.

This is one item that we can mark off our list that will assist us in helping Ian try and live a more comfortable and normal life. If you haven't read Dr. Amens book, Change your Brain, Change Your Life...I encourage you to do so. It is very good information for EVERYONE!

Friday, November 6, 2009

For many years....

Our family has searched high and low to find any type of treatments that can assist Ian with his development and behavior. One day, I had the TV on while cleaning the house and saw Dr. Amen on PBS. He was talking about his book "Change Your Brain, Change Your Life". I listened and liked what he had to say. However, I was thinking about myself. After I purchased the book and looked into Dr. Amen's studies and his clincis, I realized that maybe the good Lord had put him in our sights to assist Ian with his problems.

I am happy to announce that towards the end of this month, Mom, Ian and I will be traveling to his clinic to have Ian's brain scanned (SPECT). He is the only one in the country that does these types of brain scans.

This, and Hypoberic Oxygen Chambers are the only treatments that we have not tried. While Ian is doing pretty good these days, there is always that time when the medicine that he takes no longer has a positive affect. We are hopeful and optimistic that this will be a positive step in helping our son live as close to a normal life as possible.

Monday, August 24, 2009

First day of school



Ian (and all Melissa students) began their first day of school today. Ian will be starting the school year off with his ABA therapist coming into the school to help train the teachers on how to deal with his behavior issues.

His little sister began her first day of Kindergarden. They are two classrooms away from each other. I hope they both have a great school year and hopefully little sister can take up for him no and then.

Wednesday, February 18, 2009

A good read....

The Great Thimerosal
(Mercury) Vaccine Cover-up


Yes. This is happening in America. The pharma lobby gets to poison American children and it is "hush hush" in DC. I have no idea where the outrage lies.

Monday, February 2, 2009

Great artcile on CNN about another family with an autistic child

Click on this link to see an interesting article from CNN about another family with an autistic child.

Bannanas

So, Danielle and I spent last Wednesday together. It's not often that we get the pleasure of getting to spend a whole day together. What's the catch? Glad you asked.

It was a snowday and Melissa schools closed down including Mudpies and I wasn't going to show houses on a day like Wednesday. So what did we do? Did we sit around the house and relax? No...not industrious types like us. We worked.

Seems like yet another area daycare center closed down and my thrifty wife was taking advantage of CRAZY DEALS on preschool furnishings. So I went with her to help move some of these crazy deals to Mudpies.

While assembling these fine furnishings, I happened to look up at the wall in one of her classrooms. Seems that one of the kids at the school has an alergy to bannans. That got me to thinking.

For years, Ian has been covered in rough itchy red spots. They cover his legs and arms. It is eczema. We have been to specialist after specialist to try and help him with this condition. It drives him nuts. He itches constantly sometimes to the point of causing himself to bleed. The doctors that he has gone to have given him creams to help with the itching. Some have given him tests to see what is causing it. Milk products do seem to enhance it. But Ian has been on this highly restrictive diet since November. Why was the eczema coming back?

I had recalled that Danielle had bought a whole bushel of bannans at Sams. It is one of the food that we keep out on the counter. Ian pretty much eats them like a monkey who has been on a 30 day fast. He sneaks them like I used to sneak cookies. It took us all these years to link the two. Sure enough....no more bannans in the house and the eczema is gone. Funny how some of the answers are right in front of our face sometimes.

Friday, January 23, 2009

Special Olympics

I'm sitting here waiting for Mom at her school. I am waiting in eager anticipation so that we can go to Ian's first Special Olympic event. We are very excited for him as he will be getting a ribbon later today.

He has a new fascination with the ribbon. He loves to take us to the computer and make us print him out a ribbon.

The other night, he had done his homework and Mom printed out a homework ribbon for him. He was going to take it to his teacher to show her. He must have been so proud of himself.

The next morning I was putting Ian on the bus for school when he remembered he did not have his ribbon to show his teacher. He flipped out and kicked both bus drivers. I had to take him off the bus. He was very mad. Of coures, as parents can sometimes be, I had little patience with him and was very upset with his behavior.

I did not understand that Ian's ribbon was so special to him. He does not have the ability to communicate that to me in ways that I understand. Instead, he throws tantrums as he can not communicte like a normal kid.

After I realized how special that ribbon was to him, I felt really bad. I failed to understand that he was communicating with me in his Ian ways.

Anyway, we'll post photos of him at special olympics today.

Monday, January 19, 2009

Progress update

Ian has now been on his very specialized diet since early November. I have seen tremendous results in his ability to retain information. The beginning of the transition was VERY rough as is highlighted in some of the early posts. His behavior as scary at times.

Mom and I have modified one thing that has shown tremendous positive results with his behavior. This one thing in addition to the specialized diet is moving Ians progress in the right direction; at least I believe.

The ABA therapy behavior models have also helped us with behavior.

Stay tuned this week as Ian will participate in his first special olympic events. His first meet is on Friday and I will post some photos.